Sean Makes a Cake

Sean decided to make a cake. A layer cake. He did an excellent job!

Shwachman-Diamond America Awards Research Grants

I'm excited to announce that Shwachman-Diamond America has awarded two research grants. One for a SDS MDS (leukemic transformation) study and a second for a SDS bone density study.

I wear many hats! Political activisit, homeschooler, mom, nurse, and I fight to help find a cure for Shwachman-Diamond Syndrome. Thankful for the donors who support SDA and its mission!