Shwachman-Diamond America on Facebook

Shwachman-Diamond America has a new page on Facebook! Please like their page that can be found here: Shwachman-Diamond America on Facebook.

Those of you who know me know that one of my goals is to raise money for research to find a cure for Shwachman-Diamond Syndrome. Please help us raise awareness of this rare disease by liking our page on Facebook and sharing it with your friends.

Thanks!

Shwachman-Diamond America Awards Research Grants

I'm excited to announce that Shwachman-Diamond America has awarded two research grants. One for a SDS MDS (leukemic transformation) study and a second for a SDS bone density study.

I wear many hats! Political activisit, homeschooler, mom, nurse, and I fight to help find a cure for Shwachman-Diamond Syndrome. Thankful for the donors who support SDA and its mission!