Showing posts with label Bone Marrow Donor Drive. Show all posts
Showing posts with label Bone Marrow Donor Drive. Show all posts
Saturday, November 9, 2013
Bone Marrow Donor Drive
I like to share this video now and then. Back in 2006, my son almost went to transplant. We did a donor search and he did not have a match in the bone marrow donor registry, so we held a bone marrow donor drive. This is a video I created from the event:
Tuesday, February 15, 2011
Blood Drive Interview
On March 27, 2011 our church is having a blood drive. Today, the newspaper interviewed Sean and Joseph to get the word out. The reporter wanted to interview folks who use blood products. Because we are so thankful for those who donate blood, platelets and plasma, we are always willing to help get the word out about any sort of blood drives! Melanie, from parish care at Holy Cross, set up the interview and is putting the drive together with other volunteers. They are asking that people make appointments to donate blood and are hoping to get 38 pints donated on March 27, 2011. If you want more informatrion about the blood drive or you would like to make an appointment, email parish care: parishcareholycross@triadbiz.rr.com
Ryan (the reporter) asked the boys several questions. The one that most stands out to me is when he asked how having Shwachman-Diamond Syndrome affected their lives. Joseph quickly replied, "It doesn't really affect my life, I mean, other than we go to the hospital a lot.'"
WOW. My kids continually amaze me. Between the two of them, they have been under anesthesia over 50 times... not including all of the procedures, MRIs and treatments that they have had without anesthesia. Joseph has had neurosurgery and other surgeries and then developed infections afterward that landed him back in the hospital. He also performs certain medical procedures several times a day (every 4 hours) and takes about 40 pills a day, plus other meds..... and he can says it doesn;t affect his life!? Absoulutely amazing.
The article will be in tomorrow's paper along with an article about Matthew. Matthew was interviewed last week for an article. Here are some pictures from the interview today along with a picture of IgG from my fridge, just in case you'd like to know what IgG, a blood product, looks like.
Ryan (the reporter) asked the boys several questions. The one that most stands out to me is when he asked how having Shwachman-Diamond Syndrome affected their lives. Joseph quickly replied, "It doesn't really affect my life, I mean, other than we go to the hospital a lot.'"
WOW. My kids continually amaze me. Between the two of them, they have been under anesthesia over 50 times... not including all of the procedures, MRIs and treatments that they have had without anesthesia. Joseph has had neurosurgery and other surgeries and then developed infections afterward that landed him back in the hospital. He also performs certain medical procedures several times a day (every 4 hours) and takes about 40 pills a day, plus other meds..... and he can says it doesn;t affect his life!? Absoulutely amazing.
The article will be in tomorrow's paper along with an article about Matthew. Matthew was interviewed last week for an article. Here are some pictures from the interview today along with a picture of IgG from my fridge, just in case you'd like to know what IgG, a blood product, looks like.
