Thanksgiving Card, Fall Card, Winter Card

Here's a card I'll be making with the seniors at the Senior Center on November 7th. It's a Thanksgiving card I thought they'd like to make:

Here is a fall birthday card I made a few weeks ago (I'm on a roll posting pictures of cards I've made):

This is one I made for no particular reason-- just a winter themed card:

Christmas Cards

I've already started making Christmas cards.  This first one is my favorite. I will be making this one with the seniors at the Senior Center on November 7th. 

Here are a few others that I have made. Not sure if I like them all.... but here's what I created:

CoRDS Rare Disease Registry

Coordination of Rare Diseases at Stanford (CoRDS) registry.  This registry is for patients with rare diseases. Click on the links below for more information on what the rare Diseases Registry is, how to participate and how to contact the registry. 

The purpose of the Rare Diseases Registry is to facilitate research on rare diseases by providing a resource through which researchers can screen for prospective study participants.

CoRDS Cover Letter

CoRDS FAQ

Cords Registry The Power of Hope Flyer

Bone Marrow Biopsy Day

Many years ago, I wrote a book called Bone Marrow Biopsy Day. Amazon picked it up two or three years ago. Very exciting stuff. Have you ever wanted to know what a BMB looks like?

Recently, someone in England contacted me about using pictures from the Shwachman-Diamond America website for a nursing article to teach nurses about the bone marrow aspiration and biopsy procedure. We are always eager to help teaching efforts!

Blast from the past- Joseph has always wanted pictures of all his medical procedures. This one bone marrow biopsy day in 2007, Dr. Harris brought our camera into the OR with the boys and captured great photos. We made a photo book to bring with us on subsequent hospital visits. At the urging of Dr. Harris and the nurses, I created the book -- we've donated these to CCHMC and our local Hem/onc clinic.Joseph had the nurses sign his book and had Dr. Harris sign it as photographer.  Too cute.

Here are a few pictures from Bone Marrow Biopsy Day 2007:

Aspiration

Biopsy tool poking out

In OR

In the OR

Joseph in the OR

Dr. Harris took pictures of Petty and Bengal

The boys with Dad and Dr. Harris

The Anesthesiologist trying to get a line in.... they tried before going under, but failed

Trying to get a line in

Pitiful Joseph lets them try to get a line in

Sean in OR

Sean's aspiration

Sean's BMB