Friday, February 3, 2012

Shocking: The White House Lies on Its Blog

Not really shocking that the BHO administration would lie on its blog about the HHS mandate.  I am proud that the USCCB is taking Obama and gang to task.    They point out the lies right here  The gates of hell shall not prevail against the Church.

Woman Needs Bone Marrow Match

Mississauga Article: Woman needs life-saving match

This story hits close to home knowing Joseph doesn't have a match in the registry. To learn more about how you can become a bone marrow donor, visit www.marrow.org

Thursday, February 2, 2012

Assembly of Canonical Orthodox Bishops of North and Central America - Record of Protest Against the Infringement of Religious Liberty by HHS

Assembly of Canonical Orthodox Bishops of North and Central America - Record of Protest Against the Infringement of Religious Liberty by HHS


The Assembly of Canonical Orthodox Bishops of North and Central America, which is comprised of the 65 canonical Orthodox bishops in the United States, Canada and Mexico, join their voices with the United States Conference of Catholic Bishops and all those who adamantly protest the recent decision by the United States Department of Health and Human Services, and call upon all the Orthodox Christian faithful to contact their elected representatives today to voice their concern in the face of this threat to the sanctity of the Church’s conscience.

Shwachman-Diamond America Approves Additional Funding for the SDS registry

The SDA board recently approved $7,000 of additional funding for the North American SDS registry.  We received info on the registry and have paraphrased it below. For more information or complete details, please contact SDA.

The registry has identified more than 80 patients for the SDSR and has signed consent for more than 70, with data extraction and data entry in progress. 

SDS registry projects for the upcoming year:

1) Continuing efforst to obtain medical records from enrolled patients.

2) Analyzing the data available thus far to define the clinical spectrum of presentation. The goal of the project is to improve diagnosis.

3) Analyzing the family history of patients with SDS to determine the clinical significance, if any, of being a carrier for the SBDS gene mutations.

4) Investigating the clinical spectrum and medical course of patients presenting with "clinically defined" SDS but who lack SBDS gene mutations. Also conducting studies to determine the pathophysiologic basis of disease in these patients.

Of note, these projects depend on increasing patient accrual over the coming year.

Just wanted to keep everyone up to date on what SDA has been doing.

Pattie Curran
President, SDA