Here We Go Again

Every. Single. Time. I am blown away. We expected the MRI to be normal yesterday and it wasn't. J needs surgery.  God's will be done. J told me last night that he is praying for a miraculous healing. We, too....me, too.  

Meanwhile, I'm very stressed because of the toll Obamcare has already taken on our family.

The Battle of Guilford Courthouse Reenactment

This past weekend, my husband and son participated in the reenactment of  The Battle of Guilford Courthouse. This battle was a turning point in the war. The British casualties were so heavy, that Cornwallis left the Carolinas and never returned. This battle enables the American Victory ant Yorktown.

My son practicing firing a musket

Sean Makes a Cake

Sean decided to make a cake. A layer cake. He did an excellent job!

Shwachman-Diamond America Awards Research Grants

I'm excited to announce that Shwachman-Diamond America has awarded two research grants. One for a SDS MDS (leukemic transformation) study and a second for a SDS bone density study.

I wear many hats! Political activisit, homeschooler, mom, nurse, and I fight to help find a cure for Shwachman-Diamond Syndrome. Thankful for the donors who support SDA and its mission!