America's Pharmacy sent us this wonderful information sheet on all the components of the Mito Cocktail with our boys prescription. They were helpful and worked to get our insurance to cover the Mito Cocktail, too!
"CoQ10 also known as ubiquinone, is a natural antioxidant that is involved in producing a molecule that serves as the primary energy source for all cells. Dietary sources of CoQ10 include fish, meats, eggs, spinach, and peanuts. CoQ10 has been used in studies to prevent cancer and heart disease, increase energy levels, lower blood pressure and cholesterol levels, enhance immune system function, and for the treatment of mitochondrial disease. The UMDF recommends taking 5-15mg per kilogram of ubiquinone daily. In general, CoQ10 is well tolerated, but some side effects include nausea, stomach upset, headache, loss of appetite, and dizziness."
Wednesday, November 9, 2011
Mito Awareness Won!
I'm so excited! I just found out that my Mitochondrial Disease Awareness Card won the challenge. I receive a $20 gift certificate. I love free stamps! You can see the post here
Unity Opportunity Challenge
Here is a card I made for the current Unity Opportunity Challenge:
I used a set by Unity (Jillibean Soup) called Snowflakes Fall From Heaven.
Mito Cocktail - Carnitor (L-carnitine)
America's Compounding Center says the following about L-carnitine:
"Carnitor, also known as L-Carnitine, levocarnitine, and carnitine, is an amino acid that is naturaly produced in the liver and kidneys and is stored primarily in the muscles, heart and brain. It helps the body convert fat into sources of energy. Dietary sources of carnitine include meats (particularly red meat) and dairy products. Carnitine deficiency is rare, since the body usually produces an adequate amount, and is often due to a genetic defect, such as mitochondrial disease. Premature infants who are fed exclusively formula that does not contain carnitine may also become deficient. Symptoms and complications associated with carnitine deficiency may include muscle weakness, liver problems, heart failure, and hypoglycemia. ...The typical dosing range for patients wth mitochondrial disease is 30-100mg per kilogram daily. The UMDF recommends starting at 30mg/kg/day, and increasing to a maximum of 10mg/kg/day. Side effects associated with carnitine therapy include stomach upset, diarrhea, body odor, and rash. Carnitine may also increase the risk of seizures in patietns with a history of seizures."
"Carnitor, also known as L-Carnitine, levocarnitine, and carnitine, is an amino acid that is naturaly produced in the liver and kidneys and is stored primarily in the muscles, heart and brain. It helps the body convert fat into sources of energy. Dietary sources of carnitine include meats (particularly red meat) and dairy products. Carnitine deficiency is rare, since the body usually produces an adequate amount, and is often due to a genetic defect, such as mitochondrial disease. Premature infants who are fed exclusively formula that does not contain carnitine may also become deficient. Symptoms and complications associated with carnitine deficiency may include muscle weakness, liver problems, heart failure, and hypoglycemia. ...The typical dosing range for patients wth mitochondrial disease is 30-100mg per kilogram daily. The UMDF recommends starting at 30mg/kg/day, and increasing to a maximum of 10mg/kg/day. Side effects associated with carnitine therapy include stomach upset, diarrhea, body odor, and rash. Carnitine may also increase the risk of seizures in patietns with a history of seizures."