Friday, April 1, 2011

Blood Drive Update and Mito Walk

The Blood drive collected 44 pints of blood! Absolutely amazing. The Red Cross told us that 30 pints would be considered a good drive. 

Our family is also participating in the Energy for Life Walk to benefit United Mitochondrial Disease Foundation on October 15, 2011.  We've named our team Currans for a Cure.  I started a Facebook Page, for those of you on FB who would like to follow our progress.  I contacted the UMDF and was told we could register our team in the next few weeks.  I am really excited!

I am hoping to host a "Stamp out Mito" event soon.....  I am going to see if I can host it here at the house AND allow people to order items on-line to benefit UMDF.

We've spent a lot of time at the hospital with friends this last week.  One of our Mito friends from TN (met them in Cincy) had her daughter transported here to Brenner when her daughter's gut shut down.  She is now TPN dependent.  A few days ago, our local Mito friend's daughter landed in the hospital.  So, we've been visiting and helping out.  Mito isn't fun. 

Our lives continue on as usual-- pain, sleep issues, fatigue.... but we are thankful for each day and try to enjoy life in spite of the constant reminders that SDS and Mito are part of our lives.

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